Care of Young Adults with Special Health Care Needs
We have several transition practices that are collaborative in nature between A.I. duPont Hospital for Children, Christiana Care Health System and the University of Delaware, Center for Disabilities Studies. At duPont Hospital for Children (DHC) there is a consultative transition of care service and transition division to prepare patients and families to enter the adult health care system. As well there is a clinic for survivors of pediatric cancer, childhood HIV, pediatric cystic fibrosis, congenital heart disease and cochlear implants.
At Christiana Care Health System (CCHS), there is a primary care transition care practice (since 2009) as well as congenital heart disease, cystic fibrosis, HIV, women’s health and survivor of childhood cancer clinics.
Our primary care transition program at CCHS and transition of care service at DHC has received national attention in the news media. Our faculty has been invited to talk, present and lead transition workshops across the country to both adult and pediatric audiences including: Keck School of Medicine of University of South California, Geisinger Health System, Society of General Internal Medicine, Pediatric Academic Society, American College of Osteopathic Pediatricians, University of California at San Diego and University of Maryland. Articles and stories are featured in the Wall Street Journal (August 12, 2014 The Challenges After Surviving a Childhood Disease), Delaware News Journal (article won first place in Health & Fitness in the Delaware Press Association’s Communications Contest), National Association of Children’s Hospitals and Related Institutions and The Hospitalist (publication of Society of Hospital Medicine).
Our residents (in Year 1 and Year 3) learn to manage complicated patients with multiple medical and social issues including technology dependency, communication difficulties, tubes and shunts.
The Center for Special Healthcare Needs co-medical director, Allen Friedland, MD, FACP, FAAP and faculty Transition Care Practice: Justin Eldridge, MD, FACP, FAAP (recipient of the 2016, Outpatient Teacher of the Year from Pediatric Residency Program).
|Pertinent Presentations (National)|
|Invited speaker, Transition talk to be named. American Academy of Pediatrics National Conference and Exhibition, Sept 2017.|
|Co-speaker, Grand Rounds, Keck School of University of Southern California; “Too Old for the Pediatrician? Managing Transitions in Care” co-presenter: Jennifer LeComte, D.O. and Allen Friedland, M.D.|
|Co-Speaker, American College of Osteopathic Pediatricians (ACOP) Annual Meeting. “Effective Health Care Transition of Young Adults with Special Healthcare Needs (YASHCN): The Internist Perspective; co-presenter: Jennifer LeComte, D.O. and Allen Friedland, M.D.|
|Co-speaker, Grand Rounds, Winthrop University Hospital: “Bridging Partnerships with Patients and Providers in Transition to Adult Care” co-presenter: Jennifer LeComte, D.O. and Allen Friedland, M.D.|
|Workshop presenter, Society of General Internal Medicine Annual Meeting; “Transition of Adolescents and Young Adults with Special Health-Care Needs from the Pediatric-Oriented to Adult-Oriented Medical Home”; co-presenters: Dave DeLaet M.D., Chad Brands M.D., Allen Friedland, M.D., Eva Waite M.D., Joe Truglio M.D. and Cory Nourie MSW.|
|Speaker, Adolescent Medicine Section Meeting, National Conference and Exhibition, American Academy of Pediatrics; “The Nuts and Bolts of Successful Transition to Adult Care Services for Youth with Disabilities”.|
|Co-Speaker, Medicine Grand Rounds, Geisinger Health System; “Effective Health Care Transition for Young Adults with Special Health Care Needs: A Collaborative Effort”; co-presenters: Allen Friedland, M.D., Rita Meek, M.D., Jennifer LeComte, D.O., Cory Nourey, MSS and Kathy Cluff, MS.|
|Pertinent Presentations (Local)|
|Co-Speaker, Wilmington New Castle Pediatrics Association Annual Meeting; “Transition Your Patients, The Right Way”; co-presenters: Allen Friedland, M.D., Bobbie Joe DeHaven, Jennifer LeComte, D.O., and Cory Nourey, MSS.|
|Co-Speaker, Pediatrics Grand Rounds; Christiana Care Health System; “Transition Your Pediatric Patients”; co-presenters: Allen Friedland, M.D., Jennifer LeComte, .D.O and Cory Nourey, MSS.|
|Co-Speaker, Nemours Foundation Transition Conference. It’s Time for Me to Do What? Delaware National Conference on Effective Health Care Transitions; “The Nuts and Bolts of Effective Transition”; co-presenters: Rita Meek, M.D., Allen Friedland, M.D., Jennifer LeComte, D.O., and Kathy Cluff, MSW.|
|Workshop presenter, Nemours Foundation Transition Conference; “Strategies for Effective Transition of Young Adults with Special Health Care Needs”; co-presenters: Rita Meek, M.D., Allen Friedland, M.D., Jennifer LeComte D.O., and Kathy Cluff, MSW.|
|Co-Speaker, Bayada Nurses 5th Annual meeting for Special Children, Special Needs; “Transition for Pediatric to Adult Services”; co-presenter: Allen Friedland, M.D., and Bobbie DeHaven.|
|Farber NJ, Friedland A, Aboff BM, Ehrenthal DB, Bianchetta T. Using patients with cancer to educate residents about giving bad news. Journal of Palliative Care. Spring 2003; 19(1): 54-57 PMID: 12710116.|
|Bates K, Bartoshesky L, Friedland A. As the child with chronic disease grows up: transitioning adolescents with special health care needs to adult-centered health care. Delaware Medical Journal. Jun. 2003; 75(6):217-20. PMID: 12929331.|
|Featured. Residency Program Spotlight: “Christiana Care Med-Peds, Transition Care Practice”. The Perspective. National Med-Peds Residents Association Newsletter, 2010.|
|Quoted. “Transitioning Patients with Chronic Conditions”. The Hospitalist. February 2012.|
|Dingfield L, Friedland A. A Case of a Young Adult with Myelomeningocele: A Transition to Adult Health Care. Society of General Internal Medicine FORUM March 2013; 36 (3):10-11.|
|Bates KC, Nourie C, Hanks C, Friedland A. Legal Option, Challenges and Insights in Supporting Young Adults. Society of General Internal Medicine FORUM. April 2013; 36 (4):13-14.|
|Recognized. “Independence means buying a van”. Cape Gazette. April 12, 2013.|
|Recognized. “Patient Stories – Bobbie Jo DeHaven, Transition Story”, Christiana Care Health System Front Page website, October 2013.|
|Member, Advisory Board, Got Transition Center for Health Care Transition Improvement is a cooperative agreement between the Maternal and Child Health Bureau and The National Alliance to Advance Adolescent Health.|
|Member, Board of Directors, Endless Possibilities in the Community (EPIC) is a not-for-profit organization for people with disabilities to be active in the community. Collaboration between Christiana Care Health System Physical Therapy, Bear YMCA, University of Delaware and EPIC.|
|Clinical Report for American Academy of Pediatrics, American Academy of Family Physicians and American College of Physicians: Guidance for Clinicians in Rendering Pediatric and Adult Care Supporting the Health Care Transition From Adolescence to Adulthood in the Medical Home (update of national 2011 clinical report).|