Care of Young Adults with Special Health Care Needs
We have several transition practices that are collaborative in nature between duPont Hospital for Children, Christiana Care Health System and the University of Delaware, Center for Disabilities Studies. At duPont Hospital for Children (DHC) there is a consultative transition of care service and transition division to prepare patients and families to enter the adult health care system. As well there is a clinic for survivors of pediatric cancer, childhood HIV, pediatric cystic fibrosis, congenital heart disease and cochlear implants.
At Christiana Care Health System (CCHS), there is a primary care transition care practice as well as congenital heart disease, cystic fibrosis, HIV, women’s health and survivor of childhood cancer clinics.
Our primary care transition program at CCHS and transition of care service at DHC has received national attention in the news media. Our faculty has been invited to talk, present and lead transition workshops across the country to both adult and pediatric audiences including: Keck School of Medicine of University of South California, Geisinger Health System, Society of General Internal Medicine, Pediatric Academic Society, American College of Osteopathic Pediatricians, University of California at San Diego and University of Maryland. Articles and stories are featured in the Wall Street Journal (August 12, 2014), Delaware News Journal (article won first place in Health & Fitness in the Delaware Press Association’s Communications Contest), National Association of Children’s Hospitals and Related Institutions and The Hospitalist (publication of Society of Hospital Medicine).
Our residents (in year 1 and Year 3) learn to manage complicated patients with multiple medical and social issues including technology dependency, communication difficulties, tubes and shunts.
Our medical director, Jennifer LeComte, D.O., FACP, FAAP is chair of the newly formed, national Society of General Internal Medicine Task Force on Transition and co-chair of the Medical Committee, Delaware State Transition Task Force Emerging Adults w/ Disabilities and Special Health Care Needs (appointed by the governor). Dr. LeComte is on the Board of Directors of the Delaware Special Olympics. She received the 2016, First State School, Jane P. Maroney award (given to a professional who makes a significant difference in the lives of children), 2015 Wilmington Award,2013 Educator Rising Star Award from Christiana Care and the Department of Medicine Dr. Mark Maxwell Award for humanism.
Both Dr. LeComte and Dr. Friedland serve on the National Advisory Board, Center for Health Care Transition Improvement which is funded by the Maternal and Child Health Bureau www.gottransition.org and are members of the Pediatric Academic Society HealthCare Transition Research Consortium. They are both on the Board of Directors of EPIC (Endless Possibilities in the Community) which is a not-for-profit organization to integrate people with disabilities in community physical activities (YMCA)
New faculty Transition Care Practice: Justin Eldridge, M.D., FACP, FAAP. Recipient of the 2016, Outpatient Teacher of the Year from Pediatric Residency Program
|Too Old for the Pediatrician? Managing Transitions in Care.||Grand Rounds, Pediatrics, Christiana Care Health System||May 2016||Jennifer LeComte, D.O.|
|Too Old for the Pediatrician?||Grand Rounds, Keck School of Medicine of University of South California||March 2016||Jennifer LeComte, D.O.
Allen Friedland, M.D.
|Adult Perspective: Transition and Management of Childhood Onset Conditions||Grand Rounds, Tulane||February 2015||Jennifer LeComte, D.O.|
|Adult Perspective: Transition and Management of Childhood Onset Conditions||Grand Rounds, Carolinas||February 2015||Jennifer LeComte, D.O.|
|Best Practices in Transition Care for Young Adults with Special Health Care Needs||Autism Delaware||June 2014||Jennifer LeComte, D.O.|
|Transition to Adult Services||Society of General Internal Medicine||May 2014||Jennifer LeComte, D.O.|
|Successful Transition Models. Pediatrics to Adult Medicine||New York Mid Atlantic Consortium for Genetic and Newborn Screening Services||May 2014||Jennifer LeComte, D.O.|
|Transitions for Families||Families Speaking Up||February 2014||Jennifer LeComte, D.O.|
|Becoming an Adult. Transitioning to Adult Services||Career and Life Studies and Certificate Program at University of Delaware||2014||Jennifer LeComte, D.O.|
|Caring for Adults with Complex Conditions Originating in Childhood: Building Bridges to Ensure High Quality Longitudinal Care||Society of General Internal Medicine||2013||Jennifer LeComte, D.O.|
|Transition Care for the Adolescent Medicine Physician Specialist||American Academy of Pediatrics National Conference and Exhibition||Oct 2013||Allen Friedland, M.D.|
|Caring for Adult Survivors of Childhood Cancer||Susquehanna Health Grand Rounds, Williamsport PA||June 2013||Jennifer LeComte, D.O.|
|Medical Transitioning||Career and Life Studies Certificate Program, University of Delaware Center for Disabilities Studies||May 2013||Jennifer LeComte, D.O.|
|The Internist Perspective: navigating a bumpy road||Pediatric Kaleidoscope, duPont Hospital for Children||May 2013||Jennifer LeComte, D.O.|
|Caring for Adult Survivors of Childhood Cancer||Delaware State Osteopathic Medical Society||April 2013||Jennifer LeComte, D.O.|
|Effective Health Care Transition of Young Adults with Childhood Onset Conditions||American Academy of Professional Coders Delaware Chapter Summer||June 2012||Jennifer LeComte, D.O.|
|“Transition of Care: Not Just A Small Adult“||Systems Based Practice Interdisciplinary Conference Christiana Care Health System||May 2012||Jennifer LeComte, D.O.|
|Transition Care||Jefferson Pediatric Resident Advocacy Café||May 2012||Jennifer LeComte, D.O.|
|Med-Peds: Something for Everyone. From the Match to Milestones to Transition Care||Northeast Regional Med-Peds Meeting at University of Maryland||May 2012||Allen Friedland, M.D.|
|Transition of Adolescents and Young Adults with Special Health Care Needs from the Pediatric Oriented to Adult Oriented Medical Home||Society of General Internal Medicine Annual Meeting Workshop||May 2012||Dave DeLeat, M.D., MPH
Allen Friedland, M.D.
Eva Waite, M.D.
Chad Brands, M.D.
Joe Truglio. M.D.
Cory Nourie, MSS, MLSP
|Effective Health Care Transition of Young Adults with Inflammatory Bowel Disease||Inflammatory Bowel Disease Day at Nemours duPont Hospital for Children||April 2012||Jennifer LeComte, D.O.
Christine Herdman, M.D. (Med-Peds and GI)
|Adult Perspective: Transition and Management of Childhood Onset Conditions||Grand Rounds South Jersey Healthcare||April 2012||Allen Friedland, M.D.|
|Med-Peds: Something for Everyone. From the Match to Milestones||Third Annual Western Regional Med-Peds Conference at UC Irvine||April 2012||Allen Friedland, M.D.|
|Effective Health Care Transition of Young Adults: Promoting Autonomy, Assessing Readiness, and Generating the Portable Medical Record||American College of Osteopathic Pediatricians (ACOP) Annual Meeting, Memphis, TN||March 2012||Jennifer LeComte, D.O.|
|Adult Perspective: Transition and Management of Childhood Onset Conditions||Christiana Care Health System Internal Medicine Grand Rounds||March 2012||Jennifer LeComte, D.O.|
|Effective Health Care Transition of Young Adults with focus on Chronic Care: Self-Management Guideline||Pediatric Resident Practice Journal Club||March 2012||Jennifer LeComte, D.O.|
|Effective Health Care Transition of Young Adults||Down Syndrome Association of Delaware||March 2012||Jennifer LeComte, D.O.|
|Adult Perspectives on Transition and Management of Pediatric Onset Illnesses||St. Francis Family Medicine Residency Program||March 2012||Jennifer LeComte, D.O.|
|Adult Perspectives on Transition and Management of Pediatric Onset Illnesses||Christiana Care Family Medicine Residency Program||March 2012||Jennifer LeComte, D.O.|
|Transition from Pediatric to Adult Healthcare Services||Bayada Nurses Annual Meeting||November 2011||Allen Friedland, M.D., Jennifer LeComte, D.O., Cory Nourie, MSS, MLSP, Ilka Riddle, Ph.D., Bobbi Jo DeHaven|
|You Down with TCP (Transition Care Practice)||Christiana Care Internal Medicine Faculty Development||Sept. 2011||Jennifer LeComte, D.O.|
|The Nuts and Bolts of Effective Transition
Strategies for Effective Transition of Young Adults with Special Health Care Needs
|Nemours Foundation Transition Conference
Delaware National Conference on Effective Health Care Transitions
|May 2011||Jennifer LeComte, D.O., Allen Friedland, M.D., Rita Meek, M.D., Cory Nourie, MSS, MLSP|
|Update on Med-Peds Match Statistics; Effective Health Care Transition for Young Adults||Western Med-Peds Regional Meeting, UCSD Health Sciences||April 2011||Allen Friedland, M.D.|
|Health Care Transition for Young Adults with Special Health Care Needs: The Internist Perspective||American College of Osteopathic Pediatricians Annual Meeting||April 2011||Jennifer LeComte, D.O., Allen Friedland, M.D., Rita Meek, M.D., Cory Nourey, MSS, MLSP|
|Effective Health Care Transition for Young Adults with Special Health Care Needs: A Collaborative Effort||Geisinger Grand Rounds||March 2011||Jennifer LeComte, D.O., Allen Friedland, M.D., Rita Meek, M.D., Cory Nourey, MSS, MLSP, Kathy Cluff, MSW|
Articles/Media with our faculty related featuring transition care:
- Jennifer LeComte, D.O. “The Challenges After Surviving a Childhood Disease”. Wall Street Journal . August 12, 2014. http://online.wsj.com/articles/the-challenges-after-surviving-a-childhood-disease-1407797952
- Talente G. and LeComte J. SGIM Announces the Formation of the Adults with Complex Conditions Originating in Childhood Task Force http://www.sgim.org/File%20Library/SGIM/Resource%20Library/Forum/2013/Nov2013-01.pdf
- Bates KC., Nourie C., Hanks C., Friedland A. Legal Option, Challenges and Insights in Supporting Young Adults. SGIM FORUM April 2013; 36 (4), 6,13-14. http://www.sgim.org/File%20Library/SGIM/Resource%20Library/Forum/2013/Apr2013-06.pdf
- Dingfield L. and Friedland A. A Case of a Young Adult with Myelomeningocele: A Transition to Adult Health Care. SGIM FORUM March 2013; 36 (3), 10-11. http://www.sgim.org/File%20Library/SGIM/Resource%20Library/Forum/2013/Mar2013-05.pdf
- Friedland A. “Independence means buying a van”. Cape Gazette. April 12, 2013 http://capegazette.villagesoup.com/p/independence-means-buying-a-van/986603
- LeComte J. Treating childhood-onset disease when the patient is no longer a child, WHYY TV and Radio 2013 http://www.newsworks.org/index.php/nwtonight/item/53011-treating-childhood-onset-disease-when-the-patient-is-no-longer-a-child
- Friedland A. “Transitioning Patients with Chronic Conditions”. The Hospitalist, February 2012.
- “Success Stories from the Center of Disabilities Studies at the University of Delaware Improving Health Care Transition in Delaware for Children with Special Health Care Needs”; Centers for Disease Control and Prevention. Oct 2011.
- LeComte J. and Friedland A. “Transition of Patients from Pediatrics to Adult Care”. American College of Osteopathic Pediatricians Preview. Featured Scientific Article. August 2011.
- Friedland A. “All Grown Up and No Place to Go”. Delaware News Journal. September 21, 2010
- Friedland A. “Residency Program Spotlight: Christiana Care Med-Peds, Transition Care Practice”. The Perspective. National Med-Peds Residents Association Newsletter. 2010